Victoria's Story


· Internet Heart-related Links ·


Technical Information

Support Information

  • The Congential Heart Disease Resource Page - An excellent site containing links to support and technical information, book reviews, discussion forums, and more.
  • The Children's Heart Information Network - A good-looking site filled with information and links to more information.
  • The Congenital Heart Defect Support Group mailing list - This list is a must for parents of cardiac kids. List members are mainly parents of children with some kind of CHD. There are also a few adults with CHD, whose participation is invaluable. Any questions, whether technical, emotional, or otherwise are welcome and the list members are very helpful. There is a common bond of understanding on this list. I strongly recommend this list to all parents of cardiac kids.
  • Shadow Buddies - One cardiac kid's mom started a company that makes dolls with special problems, including "Heart Buddies."

Personal Stories

Local (National Capital Region) Information

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This page was last modified on Tuesday, 14 November 2006 19:04:35 EST
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