· Internet Heart-related Links ·
Technical Information
Support Information
- The
Congential Heart Disease Resource Page - An excellent site
containing links to support and technical information, book reviews,
discussion forums, and more.
- The Children's Heart
Information Network - A good-looking site filled with information
and links to more information.
-
The Congenital Heart Defect Support Group mailing list -
This list is a must for parents of cardiac kids. List members are
mainly parents of children with some kind of CHD. There are also
a few adults with CHD, whose participation is invaluable. Any
questions, whether technical, emotional, or otherwise are welcome
and the list members are very helpful. There is a common bond of
understanding on this list.
I strongly recommend this list to all parents of cardiac kids.
- Shadow
Buddies - One cardiac kid's mom started a company that makes
dolls with special problems, including "Heart Buddies."
Personal Stories
Local (National Capital Region) Information
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